Friday, May 24, 2013

When I Get Bigger...

Lamp hugging her new friend

One thing B and I marvel at is the innate patience our little Lamp has.  It is not the normal patience of a toddler--in fact it is not the normal patience of most adults.  Sure she still wants her Cheerios the second she wakes up in the morning and if you tell her she can watch Doc McStuffins then why isn't it on already???  But there is another type of patience in which she sees things far in the future and seems very content not to have it now, but just to know that one day it will happen.  These are her "When I get bigger can I...?" questions.  She's been posing these questions for a long time, but recently I've tried to record as many as I can.  Here are some of the latest ones.

When I get bigger can I....

...walk and do the dishes?
...walk to the park by myself?  (not alone, she means walk independently)
...walk and go?  And open the front door?
...be a ballerina?  
...can I walk and hold your hand?  And walk with dada and sister too?
When I grow up will you do a hairstyle on me too?  Thanks.
When I get bigger can I climb all the trees?  I'm gonna climb that one and that one and that one and that one... and so on for about 20 trees.

And there are so many more.  Some of these questions are regular things any toddler has to wait until they're bigger for, but many of these questions have to do with walking and other very simple things she sees us and other kids doing all the time.  I always look at her, smile and say Yes, you can do that when you get bigger.  Sometimes I say it with a catch in my throat, but I always say yes.  The truth is I'm not sure she will be able to do all these things and it hurts thinking about it, but I'm not sure she won't be able to do them either.  So of course the answer is yes.

But really, I never get over the fact that all I say is yes and she is satisfied.  She is content simply with the idea of someday.  She doesn't get frustrated about it now, it's never asked when crying or angry... she just asks in her cheerful disposition and happily moves on.  Oh that girl.  She is remarkable.

*****

Like I said, sometimes I would get a lump in my throat because realistically it doesn't seem like she'll be able to do everything she wants to do.  Then I came across this video sent in by reader Gaye and honestly, I don't even have a lump in my throat anymore, now I just think Yes!  You can do that when you get bigger!  Please watch this video of another remarkable girl named Kayla Wheeler.  I love this girls attitude and her parents' attitudes as well.  As her mom said, "We always told her 'There's nothing you can't do, we just might have to figure out a different way for you do to it.'"  I've always tried to have that mindset, but now I really believe it.  Please watch this video--it will blow your mind!






It's not just all the amazing things Kayla does, it's also her overall confidence, demeanor and attitude about life.  No pity parties here.  Such an inspiration.  This video is a few years old, I would love to somehow find Kayla Wheeler and her parents.  Such a great role model for kids, but especially kids like Lamp.  Virtual hugs to Kayla and her family.    

*****
I had a spotlight scheduled for this week, but as it sometimes happens real life gets in the way.  We should be back for more spotlights next week.  But PLEASE, I'm still looking for and always needing new spotlights.  So if you or someone you know would like to be featured in the Special Needs Spotlight please email me, or have them email me directly, at thislittlemiggy at gmail dot com.

Have a great weekend!  

9 comments:

  1. This was the boost I needed today! I feel completely inspired. And it's so great to see Lamp and her little friend together... I know that little face! I hope you and S have had a good time catching up with each other. Miss you-

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    1. Erin--Miss you too lady. We need to catch up soon, I've been meaning to email you ever since you're exciting news. Hope all is well. Thanks as always for your support. :)

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  2. Oh that made me tear up a bit. I try to prepare myself for those types of questions that my own daughter will ask, relative to her own challenges. What wonderful advice to always say yes. Because really - instilling confidence is number one.

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    1. Shauna--Glad that was meaningful to you. The truth is, she has already exceeded so many of my expectations that really, it makes sense to say yes. Deep down I know she'll have/already has limitations...but I do think she's capable of just about anything. Time will tell with our kiddos. :)

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  3. Sharon ;)11:25 PM

    Check out this Erin Burnett story about Aimee Copeland and your "yes" someday answers may come true! Best wishes to you!
    http://outfront.blogs.cnn.com/

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  4. Elliesee10:17 PM

    I love this! When we were in university we were shown a video of a man with no arms but 2 legs getting ready in the morning for his jogging, all on his own. I believe not much is unsurmountable with good cognitive capabilities - just look at how fast Lamp was able to feed herself!

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  5. Anonymous3:10 PM

    there is a girl who lives near me named bre sprecher who only has one arm, and she is also trying to become a paralympic swimmer. you should get in contact with her family! i know they would love to meet another young amputee, and I know bre would be thrilled to be a role model for lamp. https://www.facebook.com/TeamBreanna?fref=ts

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  6. So sweet. In Lamp's mind all she needs is to get bigger. I bet waiting for her arms and legs just to grow and get longer and her coordination to develop more and more, she will continue to amaze you guys. I'm so glad you document it all. It is so fun to marvel at her.

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  7. Here's a more recent story on Kayla:
    http://www.huffingtonpost.com/2013/05/09/kayla-wheeler-disabled-teen-swimming-champ_n_3248506.html

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