Jenni, I am grateful and humbled by your beautiful words. Thank you. I was particularly touched by the gifts your sweet Celia left you--Your increased compassion by trying to imagine everyone's 'parcel of pain' or my favorite, that your family grew in your ability to see love. Much love to your family. Once again I'd like to invite my readers to learn more about Battan Disease by visiting theBatten Disease Support & Research Association website: http://www.bdsra.org.
As always if you or anyone you know would like to participate in the special needs spotlight series please email me, or have them email me directly at thislittlemiggy at gmail dot com.