Wednesday, December 01, 2010

Follow Up


So my little Lampy did pretty well on Monday.  She actually did great for all 4 hours of fasting before the testing started.  But as soon as we lay her on the table for her ultrasound she finally lost it.  We had to do a lot of consoling but she made it and we got the information we needed.  Unfortunately she ended up not being able to eat for almost 6 hours and the testing went on quite a bit longer than expected, but what can you do... In the end they got the information they needed.   

The results?  Yes her stomach is small.  Not only is it small it's not positioned correctly.  She also has some pretty bad reflux (we had no idea....so just because your kid doesn't spit up a lot and doesn't seem irritated, it doesn't mean there isn't a reflux problem) and there might be some rotation of the colon.  All in all, it's not normal.  Which is a little relieving from a motherly instinct perspective.  I knew something was off.  Not only was I right, but there were additional problems as well.  When I told Susan (the mother of 5 who is an RN fyi...) that I'm really glad I pushed for testing and that she backed me up she agreed.  She said this is not something that can safely fly under the radar.  So what does this mean?  We don't know yet, but we could be looking at surgery.  So on the one hand...yes I'm glad to know my instincts were right and I feel validated as a mother and blah, blah, blah...but on the other hand of course I wish there wasn't anything wrong.  Especially something that might require surgery.  

Another little interesting tidbit is that all along we've thought little Lamp only had limb issues...and now there turns out to be a significant GI issue as well.  The good news?  Who do you think happens to be ranked #1 in Gastroenterology in the nation?  Yep.  Cincinnati.  And if you're #1 in America, you're basically #1 in the world.  


I'm not saying that another hospital couldn't have done a great job on this as well, but it sorta makes me feel that much better knowing we're getting pretty much the best treatment possible.   Just saying... 


8 comments:

  1. Yay for motherly instincts! Knowing is half the battle, right? I hope they can get this sorted out for her (and you.)

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  2. WOW... Okay, I know this really isn't great news to find out there are more issues than you thought, but it's pretty amazing to think of those blessings! She's got THE best hospital and THE best mom (yep, that's right), and with a team like that you know you will do all that can possibly be done for Lamp. Boo + yay.

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  3. Anonymous2:36 PM

    I found your blog through "Three Schneider's". Just wanted to comment on Cinci Children's gastro department. My father, who is 57, has severe digestive issues and he was sent to Cinci Children's hospital for testing and a consult. The best is the best no matter what your age!

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  4. We have been keeping you all in our prayers and will continue. Please continue to keep up updated and we will definitly do fasting prayer for surgery day.

    Maybe of interest, and if you want to know more please email me, I am now middle-aged, but have always had stomach issues because I have a very abnormally small stomach. This wasn't diagnosed until I was an adult. I can only intake a very small amount of food every few hours, about 1/4 cup.

    It sounds like you are in the right place for the best care for Little Lamp.

    Blessings, Mari

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  5. yes, Cincinnati Childrens is amazing and I actually called their GI department this summer to see if they could see Ethan. They have an amazing team of doctors. You're in good hands :) I'm sorry little Lamp has a bad tummy. GI issues are no fun. I hope tummy issues are resolved soon and in the most painless way possible. You're an amazing mom and her best advocate.

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  6. Thanks for all the support and well wishes.

    Thorney--very interesting. I'll send you an email if I have any questions...thanks.

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  7. Yea for nurses who are good advocates for their patients! :) I'm sorry to hear that there might have to be surgery, but at least you know WHAT the problem is now!

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  8. Hmmmm, I didn't know they were number ONE. I guess I better stop complaining about the two hour wait we have every time we visit and just be glad to be there!

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